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"As a former caregiver of a loved one with cancer, I often wished for a practical guide from someone who had "been there, done that." Your book is it!"Missy Lohr
Caregiver
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Index
ABC diff, 84
Acid reflux, See indigestion, 139
Acupressure/acupuncture, 184-185
Addiction, fear of, 166
Alopecia, See hair loss, 134-137
American Cancer Society, 102, 179
Look Good Feel Better, 179
American Massage Therapy Association, 188
American College of Physicians, 132
Anemia, 83, 116
Anesthesia, 104, 108-110
Anger, 52-53
as a reaction to diagnosis, 52
things that might help, 52-53
Anxiety, 122-124
regarding treatment of, 122-124
about ending a treatment phase, 111-112
Appetite
loss of, as result of depression, 54
see nutrition, 156-161
Appointments, 74-75
keeping a journal of, 72-73
Attitude, as important to emotional
well-being, 56
gratitude, 209
Basophils, 84
Biofeedback, 185
Biopsy, 81
Blood chemistry, 84-85
Blood counts, 82-84
see also anemia, 83, 116
Blood work, 81-85
keeping in a medical journal, 72-73
Bone scan, 85-86
Bowel movements
see diarrhea, 124-126
see constipation, 118-121
Breath, shortness of, 116-117
Breathwork, 199-201
using to relax for tests, 80
use after surgery, 110
Burping, see gas, 133-134
CIS (Cancer Information Service), 96
Cancer
as a chronic disease, 201, 218-221
diagnosis of, 47-62
stages of, 93-94
stress and, 53
Caregivers, 72
letting others help, 67-72
CAT or CT scan, 86-87
Catheter, 98-100
central (PICC), 98-99
Hickman, 98-99
portacath, 98, 99-100
tunneled, 98
used after surgery, 109
Chemo brain, 117-118
fatigue, 129
Chemotherapy, 91-100
antibodies used with, 93
catheter in, 98-100
clinical trials, 95-97
courses and cycles of, 93
factors to determine drug use in, 93
interferons used with, 93
questions to ask about, 91-92
side effects from, 115-178
Chest congestion
see fluid on chest, 132-133
Chest x-ray, 87
Children
help with during treatment, 68-69
how cancer affects lives of, 60
telling about cancer, 60-62
Children with cancer, 62
Chronic disease, living with cancer as, 218-221
Clinical trials, 95-97
phases of, 97
Clothing guidelines for tests, 79-80
Cold sores, see lips, 146
Communicating with your doctor(s), 63-66
Complete blood count (CBC), 83-84
Constipation, 118-121
Cosmetics, 179-180
eyebrows, loss of, 179
use in skin care, 172-173
Counselor, 48, 53, 75, 113
Death, see Dying
Dehydration, 121-122, 149
see also nausea, 154-156
see also diarrhea, 124-126
see also vomiting, 177-178
Denial, as a reaction to diagnosis, 47
attitude, 56
Dental
care, 75
see teeth, 175-177
Depression, 53-54, 57, 112-124, 117, 156, 169
Diagnosis
anger, as a reaction to, 52
denial, as a reaction to, 47
depression, as a reaction to, 53
fear, as a reaction to, 48-49
hearing the, 47
isolation, in response to, 49-50
sharing the news of, 59
shock of hearing, 47
surgery used for, 103
telling children about, 60-62
why me? as response to, 49
worry after, 50-52
Diarrhea, 124-126
Diet, see nutrition, 156-163
bland, 163
clear liquid, 125, 163
non-dairy, 163
soft, 163
Directives, medical, 76-77
Dizziness, 126-127
Doctor(s)
communicating with, 63-66
having several, 65-66
visits to the, 67
Do-not-resuscitate (DNR), 77
Driving, getting help with, 71
Dry mouth, 149-150
Durable power of attorney, 77
Dying, end of life care for (palliative), 167-169
Dyspnea, see breath, shortness of, 116-117
Dysphagia, (difficulty swallowing), see throat, 140, 176-177
EKG, before surgery, 105
Eating, healthy, 161-163
Edema, See swelling, 175
E-mail, updating med status, 68-70
End-of-life care, 167-169
Eosinophils, 84
Exercise, 180-182
Eyes, 127-128
Fainting, 128
Faith, 208-209
Family, telling of diagnosis, 59-60
anger about cancer, 52
letting them help you, 67-72
Family Medical Leave Act, 130
Fatigue, 83, 101, 116, 117, 123, 128-131, 169, 181
Fear, 48
after ending a treatment,111-112
of death, 123, 168
of pain, 122, 169
of the unknown, 122
drug addition, 166
Fever, 131-132
blisters, 146
Flatulence, see gas, 133-134
Fluid on chest, 132-133
causing shortness of breath, 116
Fluid retention
see swelling, 175
see lymphedema, 146-148
Foamy saliva, 149-150
Foot and Hand syndrome, 137-138
Forgiveness, 209
Friends
cancer in friends, 53
feeling angry about cancer, 53
letting them help you, 67-72
telling about diagnosis, 59-60
visits from, 269
Gas, 133-134
Gratitude, 209-212
HCT, (hematocrit), 83
HGB (hemoglobin), 83
HIPAA, 67, 75
Hair loss, 134-137
from chemotherapy, 134-135
from radiation, 134
head coverings, 136
wigs, 183, 192
Hand and foot syndrome, 137-138
Head coverings, 136
wigs, 182-183
Headache, 138
Healing
humor and laughter in, 56-57
friends and family important in, 59-60
touch, 185-186
Healthcare power of attorney, 77
Heartburn, see indigestion, 139-140
Hemorrhoids, 120, 138
Herbal supplements, 186-187
Hickman catheter,
Hope, 212
Hospice, 168-169
Hot flashes, 139
Humor, 56-57
Hyperpigmentation, 173
Hypnosis, self, 191-192
Indigestion, 139-140
Immune system
healthy eating and, 161-163
Infections, 140-143
after placement of port, 100
preventing, 141-143
symptoms of after surgery, 111
women, 142-143
Insomnia, See sleeplessness, 174-175
Insurance
Coverage for clinical trials, 96
Wigs, 182-183
Isolation, feelings of, 49-50
Itching, 143-146
Job Accommodation Network, 130
Journaling
Medical, 72-73
Personal, 201-203
Laughter, as aid to healing, 56-57
Lips, 147
Living wills, 77
Living with cancer as chronic disease, 218-221
Loneliness, feelings of, 49-50
Love, giving and receiving, 206-208
Lymphedema, 146-148
Lymphocytes, 84
MRI, 87-89
Magic mouthwash, 150, 176
Make-up, See cosmetics, 179-180
Massage, 187-188
Medical
directives, 76-77
journaling, 72-73
oncologist, 65
Medications
keeping a journal of, 72
list of current, 73
side effects from pain, 166-167
taking list to appointment, 73
Meditation, 199-201
using before tests, 80
Men
sexual side effects and, 171
Metallic taste, 94, 158-160
Monocytes, 84
Mouth, 149-151
Dry, 81, 121, 149-150
Foamy, 150
Sores, 150-151
Music, 188-190
Muscle relaxation, 191
NCI (National Cancer Institute), 67, 175
Nails, 151-153
Nancy, 5-15, 49, 51, 57, 120, 133, 180, 190, 208, 210, 213, 215, 218, 220, 221
Nausea, 153-154
indigestion and, 139-140
see also dehydration, 121-122
see also vomiting, 177-178
Neutrophils, 84
Neuropathy, 154-155
and hand and foot syndrome, 137
Nose sores, 155
Nurse Healers, 186
Nutrition/Diet, 156-163
bland diet, 163
change in taste, 158-160
clear liquid diet, 163
healthy eating, 161-163
loss of appetite, 156-158
non-dairy diet, 163
soft diet, 163
weight gain, 160-161
weight loss, 158
Nurturing your inner self, 179-183
special places for, 203-204
Oncologist(s), 65
PCA pump, 109
PET scan, 89
PICC lines, 98-99
PPE, 137-138
Pain
end-of-life, 167-169
evaluating, 163-165
fear of, 122, 168
level of after surgery, 108
medicines, 165-166
nerve, 166
phantom, 167
real, 163-167
reducing without drugs, 167
types of, 165-166
Pam, 17-21, 50, 72, 206, 208
Palliative care, 167-169
Pet
help with care of, 70
therapy, 190-191
Phantom pain, 167-29
Phases, of clinical trials, 97
Platelets, 83
Play and work, 204-205
Portacath, 98-100, 103
Power of attorney, 77
Prayer, 212-215
Pregnancy
bone scans and, 86
sex and, 170
tests and, 80
Procedures, see tests, 79-90
Progressive muscle relaxation, 191
Pruitis, see itching, 143-146
Questions
following diagnosis, 48
to ask about chemo, 91-92
to ask about clinical trials, 96
to ask about surgery, 104-105
what now? 55-56
why me? 49
Radiation, 100-103
external, 101-102
fatigue and, 100
internal, 103
intraoperative, 103
oncologist, 65
simulation, 102
skin care during, 101, 173-174
RBC (red blood cells), 83
Record keeping, 75-76
Recurrence, 217
Reducing pain without drugs, 167
Relaxation techniques, 80
See also 184-197, 198-215
Second opinions, 66-67
Self-hypnosis, 191-192
Sex, 169-171
men and, 171
pregnancy and, 170
women and, 169-170
Shingles, 171-172
See also itching, 143-146
Shock, of diagnosis, 47
Side effects, 115-178
Allergies, 115
Anemia, 116
Breath, Shortness of, 116-117
Chemo-Brain, 117
Constipation, 118-121
Dehydration, 121-122
Depression, 122
Diarrhea, 124-126
Dizziness, 126-127
Eyes, 127-128
Fainting, 128
Fatigue, 128
Fever, 131
Fluid on Chest, 132-133
Gas, 133-134
Hair Loss, 134
Hand and Foot Syndrome, 137-138
Headache, 138
Hemorrhoids, 138
Hot Flashes, 139
Indigestion, 139-140
Infections, 140-143
Itching, 143-146
Lips, 146
Lymphedema, 146-148
Mouth, 149-151
Nails, 151-153
Nausea, 153-154
Neuropathy, 154-155
Nose, 155
Nutrition, 156-163
Pain, 163
Sex, 169-171
Shingles, 171-172
Skin, 172-174
Sleeplessness, 174-175
Swelling, 175
Teeth, 175-176
Throat, 176-177
Urine, 177
Vomiting, 177-178
Simulation, 102
Skin, 172-174
change in pigments, 173
cosmetics and, 180
radiation care, 101, 173-174
Sleeplessness, 174-175
from depression, 54
Smiling depressed disorder, 54
Spiritual resources, 206-215
Spouse, help for, 71
Stages of cancer, 93-94
Stress from cancer, 53, 55-56, 64, 105, 116-119, 122, 124, 146, 160, 167, 169, 174, 177, 180, 187, 189, 192, 199, 204
Support group(s), 50, 75, 113, 124, 167, 192-194
Support relationships, 193-194
Surgery, 103-111
after surgery, 108
anesthesia for, 104
day of, 106-107
preparing for, 105
questions about, 104-105
reasons to have, 103-104
recovery from, 108-110
things to bring for, 107
Surgical oncologist, 65
Susan, 23-32, 49-50, 51-52, 54, 58, 59-60, 61, 198, 202, 207, 220
Swallowing, difficulty in, 140, 176-177
Swelling,
from chemotherapy, 175
of arms and legs, 146-147
Taste, changes in, 158-159
Teeth, 75, 175-176
Terri, 33-45, 48, 58, 120, 140, 150, 153, 155, 160, 170, 171, 201, 220
Tests
clothing guidelines for, 79
common types of, 81-90
getting results of, 90
how to prepare for, 79-80
journaling results of, 72-73
Throat, 176-177
Time, appreciating, 198
Treatments, 91-113
Chemotherapy, 91-100
ending a phase of, 111-113
journaling reactions to, 72-73
Twerski, Rabbi Mordecai, 211
Ultrasound, 90
during biopsy, 81
Urine, 177
Vertigo, 126-127
Visualization, 194-196
for shortness of breath, 117
Vomiting, 177-178
see also nausea, 153-154
WBC (white blood cells), 84
Waiting, things to do while, 74
Weight, 156-163
Weil, Andrew, MD, 189
Why me? -49
Wigs, 182-183
and turban loan program, 74
Wind, see gas, 133-134
Women
Infection in, 142-143, 177
Sex and treatment, 169-170
Work and play, 204-205
Worry, 50-52, 90, 112, 203
X-ray, chest 87
Yoga, 196-197
